0:00

This is iHeartMedia's CEOs you should know, sponsored by Comcast Business Powering Possibilities.

0:07

You imagine being a parent. You've never heard the words epidermalysis belosa before.

0:11

Our big, bold, audacious goal at EBRP is to cure EB by the

0:16

end of this decade and pioneer a new innovative business model that can apply to

0:20

the four hundred million people on this planet with a rare disease. You know,

0:23

it's hard to compare, but it's particularly one of the more devastating disease

0:27

I've worked with. Skin is the largest organ in the body, and for

0:30

those born with EB, the skin just simply doesn't work. The good news

0:33

is eb's a monogenetic disease, which means it's caused by one genetic mutation that

0:38

we know. So that gives us hope, courage, optimism to charge forward

0:42

with endless urgency to reach that target of a cure by twenty thirty. So

0:46

we believe we have a model of business that's worked. CEOs you should know

0:50

its powered by iHeartMedia and sponsored by Comcast Business Powering Possibilities all the speed your

0:56

business needs. With Comcast Business, it's not just possible it's happening